My thanks to everyone who contributed ideas and examples to a combined response. Three main points are coming across very strongly:
1. PIP should be about helping us regain as much Personal Independence as possible so we can fulfil our life and work potential.
2. Professional experts on our functional needs are as important as those for our medical conditions.
3. One size doesn’t fit all. We are people, not numbers.
I’m aiming to send the combined response (rather long) next week and will share links with everyone in case you want to express your support.